Keep Some Room

As parents of special needs kiddos, our days are filled with task after task: 

• finding the right brand of macaroni and cheese, the one our kid will eat
• helping them bathe
• stocking up on the right kind of pull-ups
• feeding them by g-tube
• sitting on the phone with the insurance company trying to get a bath chair covered
• applying for SSI
• holding them when they meltdown

We can get bogged down in the day to day. We’re just getting through, surviving, and trying to help our child or children the best we can.

We attend countless meetings where we are forced to focus on all the things they CANNOT do, so that we can get the school district to provide services to help them learn to do all those things. It can lead us to feel pessimistic about our children’s futures. But today, I am asking you to push back against the worry that threatens to fill your whole heart.

Hold a little room for the idea that our kids’ futures may look brighter than we can imagine. We don’t need to know how that will be, what it will look like or any of the specifics.  We can just have that spark of light that reminds us that our little people are miracles in their own right. They are changing the world for the better and every year there are more and more opportunities for them to live extraordinary lives.  Hang in there, moms and dads. As you work through today’s tasks, keep some room in your heart for the unimaginable. 

Sending you all biggest hugs!